Cystic Fibrosis is a life threatening, genetic disease that causes persistent lung infections, and progressively limits the ability to breathe (Cystic Fibrosis, n.d.).Pathophysiology and History of the Disease.
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Cystic Fibrosis is caused by defects in the cystic fibrosis gene. Cystic Fibrosis was recognized over 400 years ago in Germany. There is no cure for Cystic Fibrosis.Impact on Adults to the Health Care System and Nursing Practice Increased heath care costs Over crowed clinics Individuals received less personal attention Limited number of hospital beds Nursing educationImpact of the Disease on Childhood Altered body image Impaired relationship with peers Impact of living with a chronic diseaseImpact of the Disease on Adults Burden of care increases Taking more medicines and receiving more treatments. Lung damage is greater in adulthood than earlier in life. Fertility issues (Heintz, 2010, para. 6)Reasons People with CF are living into Adulthood GENE THERAPY ANTIMICROBIAL THERAPY THE MODERN CF CARE CENTER MUCOLYTICS MUCOCILIARY CLEARANCEImpacts this Disease will have on the Adult Client. Mentally and emotionally Physically Sexually Economically, specifically as it relates to the ability to access health insurance and health care Susceptibility to engage in substance abuse Prenatal care and childbearing (see additional slide) Occupational considerations and hazards (see additional slide) Ability to cope with stress (see additional slide)Pregnancy Pregnancy is now possible with cystic fibrosisPregnancy Importance of Prenatal Care Pregnancy Statistics Focus on Family PlanningInfertility causes The majority of men with cystic fibrosis have associated congenital bilateral absence of the vas deferens ( mutations, 1995). Female infertility is less clear. There is a theory that the vaginal mucosa is to thick for sperm passage. Other reasons are thought to be low BMI, poor nutrition, and chronic infection (Hodges, 2008).Choosing a career Cystic Fibrosis should not prevent one from pursuing the career they seek Some careers pose greater health risks for Cystic Fibrosis patients (Careers, 2013)Learning to cope The key is to limit stress by: Knowledge: ask, watch, study and read Support: support groups, get in touch with other families that know the ropes. Planning: getting through daily life will be overwhelming, write a daily plan. Strength: do not listen to well meaning people with negative advise listen to your healthcare providers (About, 2014).Outcomes for the Adult Patient Adequate airway clearance Reduction of risk factors associated with respiratory infections
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